So heres the story... we found out i was pregnant in April, at 10 weeks, my first ultrasound we were stunned to find out i was having twins.. it was'nt untill 26 weeks that i found out they were girls!!
6 days later to my surprise i went into labour and had an emergency c section and had my beautiful gurls alana(oct 17th 12:14am) weighing 960grams and Alexis(oct 17th 12:15am) 1024grams. they were imediatley seen by a team from sick kids, and 6 long hours later they were finnally brought into my room were i saw them for the 1st time for 2 minutes before they were taken to Womens college down town. where they stayed and a day n a half later i was finnally transfered down there so i could see my little gurls.
we went from watching them lose weight to gaining weight, being on many different machines to off them than back on.. starting and stoping increaseing and decreasing their tube feedings from only being to "hand hug" or touching them to finnaly being able to hold our little gurls...
On nov 17th our daughter alexis, who was increasingly geting healthyer by the day took a turn for the worst and got very sick.. to the drs surprise she was able to fight and semi stabalize herself enough to be transfered to Sick Kids where she fought her hardest but sadly passed away Monday November 19th in our arms, surronded by loving family members. it was the hardest day of our lives and we miss her more than words could say but in our hearts she'll remain forever!
With our other daughter still at womens college made it very difficult, although harder than ever we managed to stay as strong as possible for her. She started growing stronger and stronger as each day went by, she was finnaly moved up to a level two nursery where we got to do much more with her, change her diapers, weigh her, hold her bath her. after a week or so there she was transfered to Centenery hospital where she remained untill she was able to completely eat on her own. on New years eve we were finnaly able to bring our little miracle home after the longest 68 days of our lives.

11:16 PM

I am writing to say thank you to the Linden Fund for the wonderful Christmas stocking left for my son Kinley in the McMaster NICU... He is 8 weeks old... He was born October 29th at 35 weeks... He remains in the NICU to date as he was diagnosed at birth with Acute Lymphoblastic Leukemia... He is currently on a respirator due to a complication from his chemo therapy drugs... I am very grateful that despite his abnormal babyhood that my little "peanut" got a "normal" Christmas including a visit from Santa via the Linden Fund...

God bless you & all that you do!!

8:06 PM

Hi all,

I left a message on facebook and am seeking your help in getting my son home.

Lincoln is about 6 months old and is finally physically ready to come home. Discharge date was yesterday but plans changed when our insurance company wouldn't cover a $10,000 saturation monitor for when he sleeps at night. Lincoln belongs to ACDS which covers ventilation equipment for hom but not a saturation monitor. The o2 company has apnic monitors but doctors say by the time Lincoln would become apnic, it would be too late. St. Jo's in London has one and are willing to lend it but for legal reasons, won't. Anyone know about Sinai?

We have 3 options that we can think of right now:
1) find a monitor or $10,000
2) find a way to have overnight care with him
3) wait and hope he continues to get better so he doesn't need a monitor at night

Does anybody have any suggestions as to how we can go about any of these 3? New suggestions?

We would love to have our son home for Christmas as a NICU is not the place to be for a 6 month old baby. Doctors, nurses and family want him home but this technicality is in the way. We need suggestions. Please email me on Facebook, at allijoy82@hotmail.com or phone at 519-421-5215. Thanks for any and all suggestions,

allison

7:57 AM

My daughter was born on June 27th 2003 at the Hotel Dieu Grace hospital in Windsor. We had a long difficult pregnancy and she it was finally decided that for her life and mine she needed to come into this world. So on June 27th she was born at 30 weeks with severe IUGR weighing 2lbs. After a week in Windsor she was stable enough to be life flighted to the KW hospital much closer to home. She had lots of ups and downs in the NICU but came home after 60 days weighing 3lbs 15ozs. She is turning 4 in 2 days and is a loving, caring, active, inspirational but very small (28lbs) little miracle. She is my hero in so many ways. This is the first I have heard of the Linden fundation and I look forward to exploring your site and finding out how and where I can help others. Keep up the great work.

8:15 AM